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Thread: Sinus/Cluster Headaches........

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  1. #16
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    That sucks Bigscoop,I do feel for yeah.i know what you go through because i know what my brother goes through.
    YOU KNOW MY STANCE,LIVE FREE OR DIE


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  2. #17
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    Awe,praying for you to get better or find some comfort,God Heal big scoop from his sinus headaches in Jesus name,Amen,,HH

  3. #18
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    In a way, I'm kinda glad to have experienced them. Sounds crazy, I know, but.....I think they have made me a lot more tolerant, and not just with pain, if that makes any sense? Hard to explain, but I do appreciate what having them has taught me about life in general. So even on the bad days, they're still good days. Someone in a rage once called me, "too passive" and I said, "I can live with that".
    "The key to finding gold is finding places where it can be accessed."

  4. #19
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    I think I am getting different than you. I don't get 'headaches' like you are describing. I get the dull throb, but I am mainly tons and tons of pressure in the face and neck. Mine are really sinus related. My eyes 'see and feel' funny but my hubby gets the migranes. He says he sees spots sometimes. I don't have that. It can last for days or hours. They come on like a flash also. Fine one minute, next minute suffering to the max.

    after a bad bout I am dragging, sleepy, wore out and feel drained. (Might be the million meds I have taken)

  5. #20
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    Quote Originally Posted by FarmerChick View Post
    I think I am getting different than you. I don't get 'headaches' like you are describing. I get the dull throb, but I am mainly tons and tons of pressure in the face and neck. Mine are really sinus related. My eyes 'see and feel' funny but my hubby gets the migranes. He says he sees spots sometimes. I don't have that. It can last for days or hours. They come on like a flash also. Fine one minute, next minute suffering to the max.

    after a bad bout I am dragging, sleepy, wore out and feel drained. (Might be the million meds I have taken)
    If they are truly sinus related try this....will stop them from getting bad and really shorten them. Take a clean tissue and roll the end of it into a very fine point a couple of inches long. Now this is kind of gross, but it works. As soon as you feel the headache coming on stick this up your nose until you feel it tickling those tiny follicles that make you sneeze. Here's what happens......as we age some of us lose the required sensitivity in these follicles for one reason or another which is important. When we sneeze our sinuses and tear ducts open up and purge/flush themselves, without this natural release they will continue to build pressure, often becoming very dry and swelled. So in essence, you want to tickle these until you sneeze and you'll be amazed at how fast your sinuses and tear ducts will open and pour, thus releasing/flushing the pressure it is failing to do naturally. May take two or three good sneezes/releases but I promise you you'll notice immediate relief. This same tactic will even stop my headaches from getting too bad and shorten duration if I can do this soon enough. Like I said, the real crushers usually come at night, or when I'm just to busy during the day to take the time out to address them as soon as I get the sense that one is on the way. Sounds nuts, but it works most of the time.
    "The key to finding gold is finding places where it can be accessed."

  6. #21
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    Never have I heard that one at all. BUT as icky as it sounds shoving rolled paper up my nose when I am suffering next time I will try it. makes sense I guess

    If it worked for you, then I have to say I will try it!

  7. #22
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    Quote Originally Posted by FarmerChick View Post
    Never have I heard that one at all. BUT as icky as it sounds shoving rolled paper up my nose when I am suffering next time I will try it. makes sense I guess

    If it worked for you, then I have to say I will try it!
    You know how it is, in light of the pain, I'd stick the space shuttle up there if I thought it might help. I mean, it's not like it's gonna hurt to try.
    FarmerChick likes this.
    "The key to finding gold is finding places where it can be accessed."

  8. #23
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    I hit like on that post and still have to give ya a

  9. #24
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    I started having cluster headaches a while back. went to er cuz I could barely walk. had migraines in past so I knew it wasnt that. doc said it was the nerves. they were irritated & swelling? called it neuritis. gave me a magic pill & it went away. it was not a narcotic or a pain killer it was speciffically for nerve pain. chk it out. I went from bed with blankets over my head, to outside mowing & enjoying life.
    Hope you can get rid of them.
    FarmerChick likes this.
    dancing in the fire!

  10. #25
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    "If they are truly sinus related try this....will stop them from getting bad and really shorten them. Take a clean tissue and roll the end of it into a very fine point a couple of inches long. Now this is kind of gross, but it works. As soon as you feel the headache coming on stick this up your nose until you feel it tickling those tiny follicles that make you sneeze. Here's what happens......as we age some of us lose the required sensitivity in these follicles for one reason or another which is important. When we sneeze our sinuses and tear ducts open up and purge/flush themselves, without this natural release they will continue to build pressure, often becoming very dry and swelled. So in essence, you want to tickle these until you sneeze and you'll be amazed at how fast your sinuses and tear ducts will open and pour, thus releasing/flushing the pressure it is failing to do naturally. May take two or three good sneezes/releases but I promise you you'll notice immediate relief. This same tactic will even stop my headaches from getting too bad and shorten duration if I can do this soon enough. Like I said, the real crushers usually come at night, or when I'm just to busy during the day to take the time out to address them as soon as I get the sense that one is on the way. Sounds nuts, but it works most of the time."

    Big Scoop. No disrespect intended but that is a bunch of mularkey. I strongly advise nobody ever try that. HAs can be extremely difficult to treat because they can come from a variety of sources. It is maddening for an md to track down the cause because more often then not the patient is not compliant with treatment. If you truly have cluster HA's then that is a genetic condition and there are medicines that can help. Other sources of HA's can include the following:
    1. Withdrawal from nicotine.
    2. Withdrawal from caffeine.
    3. Withdrawal from alcohol.
    4. Allergies from the outside world: mold, pollen, grass, etc...
    5. Allergies from the inside world: scented candles, laundry detergent, fabric softeners, stuffed animals, mounted animals.
    6. Irregular sleep cycle.
    7. Depression.
    8. Nerve impingement or previous cervical injury.
    9. Work stress.
    10. Eye strain (staring at a computer.)
    11. ...and numerous others.

    The list goes on and on and on. Imagine trying to treat a patient for HA's when they refuse to stop smoking and drinking coffee. I understand, I'm a coffee addict myself, but I can't give a magic pill to prevent what people are doing to their bodies. I agree, it is difficult to get good treatment at a VA. I truly am sorry that you have HAs, but if you see the right specialist there is help...

  11. #26
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    Quote Originally Posted by Crispin View Post
    "If they are truly sinus related try this....will stop them from getting bad and really shorten them. Take a clean tissue and roll the end of it into a very fine point a couple of inches long. Now this is kind of gross, but it works. As soon as you feel the headache coming on stick this up your nose until you feel it tickling those tiny follicles that make you sneeze. Here's what happens......as we age some of us lose the required sensitivity in these follicles for one reason or another which is important. When we sneeze our sinuses and tear ducts open up and purge/flush themselves, without this natural release they will continue to build pressure, often becoming very dry and swelled. So in essence, you want to tickle these until you sneeze and you'll be amazed at how fast your sinuses and tear ducts will open and pour, thus releasing/flushing the pressure it is failing to do naturally. May take two or three good sneezes/releases but I promise you you'll notice immediate relief. This same tactic will even stop my headaches from getting too bad and shorten duration if I can do this soon enough. Like I said, the real crushers usually come at night, or when I'm just to busy during the day to take the time out to address them as soon as I get the sense that one is on the way. Sounds nuts, but it works most of the time."

    Big Scoop. No disrespect intended but that is a bunch of mularkey. I strongly advise nobody ever try that. HAs can be extremely difficult to treat because they can come from a variety of sources. It is maddening for an md to track down the cause because more often then not the patient is not compliant with treatment. If you truly have cluster HA's then that is a genetic condition and there are medicines that can help. Other sources of HA's can include the following:
    1. Withdrawal from nicotine.
    2. Withdrawal from caffeine.
    3. Withdrawal from alcohol.
    4. Allergies from the outside world: mold, pollen, grass, etc...
    5. Allergies from the inside world: scented candles, laundry detergent, fabric softeners, stuffed animals, mounted animals.
    6. Irregular sleep cycle.
    7. Depression.
    8. Nerve impingement or previous cervical injury.
    9. Work stress.
    10. Eye strain (staring at a computer.)
    11. ...and numerous others.

    The list goes on and on and on. Imagine trying to treat a patient for HA's when they refuse to stop smoking and drinking coffee. I understand, I'm a coffee addict myself, but I can't give a magic pill to prevent what people are doing to their bodies. I agree, it is difficult to get good treatment at a VA. I truly am sorry that you have HAs, but if you see the right specialist there is help...
    Maybe that's the issue, "the right specialist"....I certainly have seen my share over the years and I am very compliant, just no root cause was ever found. Gets very frustrating and expensive on this end as well. As far as the tickling of the follicles, this was something that an MD suggested to me some time ago and all I can tell you is that, "it works." Just did it last night and again today, worked both times. And this is another area of frustration, I have yet to get the same suggestions or treatments from different doctors & specialist, each always applying their own insights to the problems. As a patient, I can't tell you how frustrating this gets. The plates and screws in my neck, two different emergency rooms diagnosed it as a torn muscle when in reality I had disk that had shattered. So while I understand you frustrations, the same is also true on the other side, the paying side. All I can tell you is that I am a walking example of someone who is still suffering after many, many, attempts with the various medical professions. Why should patients have to keep paying without results for so long?
    Last edited by bigscoop; Oct 12, 2012 at 11:48 AM.
    "The key to finding gold is finding places where it can be accessed."

  12. #27
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    Crispin,

    Maybe you can offer some insight into this. When I was younger I suffered from really bad hey fever, kept having to have my nose cauterized to stop the bleeding. One day I am sneezing and my head is just draining like crazy so I cover the left side of my nose with my finger and I try to blow like heck out the congested side. Well, what came out was really strange, like this tiny piece of Honey Comb cereal, never will forget that. Looked like torn tissue but firm. I've always wondered if maybe I didn't blow a piece of sinus right out of my head? I'm serious, it actually happened just as I'm telling you. Any idea what that might have been? It was about that time that my headaches began.
    "The key to finding gold is finding places where it can be accessed."

  13. #28
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    Quote Originally Posted by bigscoop View Post
    Crispin,

    Maybe you can offer some insight into this. When I was younger I suffered from really bad hey fever, kept having to have my nose cauterized to stop the bleeding. One day I am sneezing and my head is just draining like crazy so I cover the left side of my nose with my finger and I try to blow like heck out the congested side. Well, what came out was really strange, like this tiny piece of Honey Comb cereal, never will forget that. Looked like torn tissue but firm. I've always wondered if maybe I didn't blow a piece of sinus right out of my head? I'm serious, it actually happened just as I'm telling you. Any idea what that might have been? It was about that time that my headaches began.
    I've had something similar a couple times from the left sinuses. I was having the worst allergy type symptoms along with the headaches back in 1995. At times felt like I would drown from the drainage . . . sometimes it would unexpectedly flow from my nose like a nosebleed and just as fast. Once the "chunk" came out, my allergy symptoms soon went away.

    Definitely looked like it was human tissue, very firm and large enough that I wasn't sure how it came out of the nasal opening. Happened a couple times that year.

    Same thing happened in 2002 or 2003 and again at least twice had the same bit that looked like human tissue.

    In both instances, the allergy symptoms AND excruciating headaches soon went away. Also, in both cases, shortly before the incident I would get smaller bits of that material each time I blew my nose.
    Know your homophones (as opposed to homophobes like me)! Know which ones to use ... and their meaning:

    "Know" is related to knowledge, while "No" is a negative response.

    "There" is a location, while "Their" shows possession and "They're" is the contraction of "They are".

    "Which" specifies an item from a set but a "Witch" casts spells and wears a pointy black hat.

    "Patients" (people receiving medical care) must show "patience" (tolerate delay).


  14. #29
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    Quote Originally Posted by Chadeaux View Post
    I've had something similar a couple times from the left sinuses. I was having the worst allergy type symptoms along with the headaches back in 1995. At times felt like I would drown from the drainage . . . sometimes it would unexpectedly flow from my nose like a nosebleed and just as fast. Once the "chunk" came out, my allergy symptoms soon went away.

    Definitely looked like it was human tissue, very firm and large enough that I wasn't sure how it came out of the nasal opening. Happened a couple times that year.

    Same thing happened in 2002 or 2003 and again at least twice had the same bit that looked like human tissue.

    In both instances, the allergy symptoms AND excruciating headaches soon went away. Also, in both cases, shortly before the incident I would get smaller bits of that material each time I blew my nose.
    I only recall it happening once, but it clearly looked like a piece of firm human tissue in the shape of a honey comb. My headaches are on this same side, the right side, main pressure is right above the right eye in the brow area, just above the tear duct. From here it radiates up and over the right side of my head, down my neck and into my shoulder blade area. Also invades the cheek and jaw and general right side of my face and head. When they get really bad the vision on the right side can get blurry and extremely sensitive to light. The other thing that happens just prior to an attack, "everything" gets extremely dry, eyes, throat, nose, etc. I know a sudden change in pressure triggers them, such as an approaching storm, but this only seems to come into play during the spring and fall, sometimes in the winter, but never in the summer. And the other thing.......I don't have bad allergy reactions like I use to have when I was younger, no typical runny noise, constant drainage and sneezing, etc. Just the quick influx of pressure and then the headaches, then all the other typical stuff starts happening. Headaches may last an hour or so, but they may come a dozen times in 24hr period. Prevent one and the next one is always worse. Stop three or four and there is no doubt a real monster is building and that's it's inevitable.
    "The key to finding gold is finding places where it can be accessed."

  15. #30
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    The thing blowing out of the nose is a piece of human tissue but not what you think it is. What happens is a small irritant will get lodged deeper into one of your sinuses. Macrophages will encase the pollen (for lack of knowing exactly what is.) The macrophages then trigger Interleukins and Interkinins which cause the immune casecade to follow. The problem is that this is not happening with just one tiny pollen particle but thousands. Eventually they build up and start to cause irritation...leading to a sinus pressure headache. When you blow that chunky stuff out it looks like tissue but is not in the technical sense of the word. However, that is something the body created. Judging from what you are describing it sounds like you are having severe sinus pressure headaches. Cluster Headaches are familial...I can't imagine what they feel like but several of my patients have told me that suicide seems like a reasonable option. Some allergists recommend having your sinus' "cleaned out." That is effective for the season but will just build up again for the next one. Three times a day sinus rinuses can be helpful but you will still get headaches. Have you been to an allergist for testing? It is a long, expensive process, but if they can isolate what you are allergic to then you can build up an immunity. Again, sorry about your headaches. They are one of the hardest things to treat in medicine. Have you tried amitriptyline? If amitriptyline is helpful then that would eliminate a number of different sources. The plates in your neck could also be a cause. You would need to have an x-ray. I can't tell you how many plates and screws I've seen broken. If that was the case then what you are having is referred pain and cymbalta would be very helpful...good luck. Happy to answer any more questions. Just to make it clear, I am not establishing a doctor-patient relationship through this post. I am talking about HAs on general terms.
    bigscoop likes this.

 

 
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