eagle77
Sr. Member
- #1
Thread Owner
Since shortly after birth my son has had a Shunt. The last 15 years have been uneventful and he has enjoyed the almost normal life of any other boy (except football-no contact sports allowed). He is a Life Scout working towards his Eagle and outstanding member in Order Of The Arrow. Beginning of May he became extremely sick and I rushed him to the ER. To have your child laying on the floor screaming and begging for you to make the pain go away because his head hurts is a rather difficult thing to happen. Needless to say we ended up in Omaha under the care of a Neuro Surgeon.
He has had 3 surgeries, in hopes to correct the shunt and as of yet to no avail. Yesterday we had to make another fast trip to Omaha for surgery 3. Luckily my employer has an excellent sick leave policy and I can stay home (haven't been to work since May 1) to monitor and nursemaid him. He has outstanding courage to go through this each time and endure a pain that no drug will lessen the pain (I've watched them pump enough Morphine in him that would have knocked out an entire platoon, only to watch him still screaming.)
The wife and I are handling the overload of stress well but yesterday he was awaiting his turn for surgery and expressed his frustration and is at the point of giving up his activities and living the life of a kid that has to do nothing and sitting around the house waiting for the next symptons. Needless to say he and I had a large dose pep talk. He spoke to his twin brother on the phone and told him the same thing, again we had this intense discussion.
The Surgeons are working hard in trying to resolve the problems, but they even admit that his condition is unique requiring a completely different approach. There is a team of Neurosurgeons and doctors of Neurology working on his problem. Hopefully yesterdays surgery solves the problem, the next steps if the catheter doesn't work is more invasive and higher risk with each step. He and us have discussed these options and he doesn't look forward to the possibilities.
So any extra prayer that he can have to help would be greatly appreciated.
He has had 3 surgeries, in hopes to correct the shunt and as of yet to no avail. Yesterday we had to make another fast trip to Omaha for surgery 3. Luckily my employer has an excellent sick leave policy and I can stay home (haven't been to work since May 1) to monitor and nursemaid him. He has outstanding courage to go through this each time and endure a pain that no drug will lessen the pain (I've watched them pump enough Morphine in him that would have knocked out an entire platoon, only to watch him still screaming.)
The wife and I are handling the overload of stress well but yesterday he was awaiting his turn for surgery and expressed his frustration and is at the point of giving up his activities and living the life of a kid that has to do nothing and sitting around the house waiting for the next symptons. Needless to say he and I had a large dose pep talk. He spoke to his twin brother on the phone and told him the same thing, again we had this intense discussion.
The Surgeons are working hard in trying to resolve the problems, but they even admit that his condition is unique requiring a completely different approach. There is a team of Neurosurgeons and doctors of Neurology working on his problem. Hopefully yesterdays surgery solves the problem, the next steps if the catheter doesn't work is more invasive and higher risk with each step. He and us have discussed these options and he doesn't look forward to the possibilities.
So any extra prayer that he can have to help would be greatly appreciated.
.
threw the bedpan at the doctor....and 6 months later she was walking. 
